This is an incredibly insightful post that I think is absolutely spot-on. While I’m a self-confessed research addict, I do find it disturbing that researchers continue to approach the Asperger’s/autism spectrum from an exclusively pathological point of view, based on their own historically egocentric observations, without so much as asking us for any part of our perspective at any time. Thus, much of the research remains stubbornly aimed at finding causes, correlations, and cures. The first two do little to nothing to improve the lives of anyone already in existence, and the third would only be useful to a small subset of the spectrum community. NONE do anything to actually increase the enlightenment or understanding between the two neurotypes, especially of the neurotypical community, of the spectrum community (i.e., no advances have been made by the scientific community to solve the issue of Asperger’s/autistic people being continually misunderstood by the majority of the neurotypical population). This is such a slamming-awesome post 🙂 ❤
(I’ll add header images and tags and stuff a little later, after work) 🙂
I was going to write a long, detailed post directed at MIT about their announcement of a new Center for Autism Research, which will be focused on lifting the “burden” of autism and developing “methods to better detect and potentially prevent autism spectrum disorders entirely.”
I was going to talk about how, scientifically, any approach to a complex problem requires using the correct model, and explain that I think they’re using the wrong model of autism — a pathology model rather than a neurodiversity model. I was going to pull quotes from articles about this new center (as well as the existing autism research going on at MIT, which is already along the same lines) and contrast them with quotes from MIT’s president about inclusion and respect for students of all backgrounds.
But I’m just tired of it all.
I understand that our whole society pathologizes difference: there are…
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